About Robinn

Robinn is a non-binary lgbtq+ and disability rights activist who lives with a rare, chronic illness. Through the written word, they raise their voice for justice and visibility during this time of exploring yet another diagnosis. Insisting that illness may shape one’s life, but never fully define it.

Robinn’s passion for writing is shaped by a life journey of struggle and resilience, rooted in the fight for human rights and lgbtq+ equality. These experiences give depth to their voice, turning words into a force for change and a source of strength for others.

The Journey

This space between diagnosis and uncertainty is one of the hardest places to be. That’s the reason behind the story of My Legacy.

Living without answers means dealing with skepticism and the weight of uncertainty. A lack of objective evidence can make the illness feel invisible, undermining the very real experience of it.

Yet even in this uncertainty, there are moments of strength. Living in limbo also teaches patience, resilience, and how to wait for the unknown.

Lectures

Ever wondered what it’s like to live with a rare disease? Facing a life-changing diagnosis, going through multiple medical examinations, and not least – waiting to be heard by the medics.

Robinn speaks about these challenges, but also about how one can transform pain into power. How to turn the negative into something meaningful.

An inspiring journey of finding strength in the difficult.

Now you can book Robinn for lectures that share personal experiences, insights, and inspiration.